Public engagement occurs when the public – including patients, survivors, family, and the general public – meaningfully and actively collaborate in the governance, priority setting, and conduct of health research, as well as in summarizing, distributing, sharing, and applying the knowledge gained. Examples of how the public might engage with research include:
- Helping to develop research questions and relevant outcome measures to ensure that the project and its results will be useful and important to patients, families, and the public.
- Defining the characteristics of study participants to minimize the risk that certain patients will be mistakenly excluded.
- Designing the study to minimize disruption to patient, family, and public participants thereby increasing recruitment and retention in studies.
The Canadian Resuscitation Outcomes Consortium (CanROC) has made a strong commitment to survivor and public engagement in all of our research and public health initiatives.