Partnering with Survivors and Families to Set Cardiac Arrest Research Priorities: Moving Towards More Patient-oriented Resuscitation Research
PI: Kaity Dainty
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Summary:
Background: “Priority setting” is something that we do in research in order to get a range of opinions on what research questions are the most important or timely in a particular field. Until recently, this is typically done with a group of expert health care providers and researchers and has not involved patients, family or the public.
Methods: We received funding from the Canadian Institutes of Health Research to partner with the James Lind Alliance (UK) and use their proven consensus methodology for Public Priority Setting Partnerships (PSPs). We used two rounds of public and health care professional surveys to create the priority lists and an in-person consensus workshop to decide upon the top 10 priorities from a short list of 25.
Results: The initial survey yielded more than 425 responses and 1500 “questions” from survivors, family members, lay responders, physicians, nurses, rehabilitation specialists, paramedics, etc. The second survey asked participants to rank a narrowed list of 75 questions. The final top 25 questions will be brought to the in-person consensus meeting in November 2019 where a top 10 will be selected by the multi-stakeholder group.
Conclusions: This type of inclusive research priority setting provides extremely important information for the international Resuscitation Community. The results will provide a guide for priority areas of research and the drive our community to include questions that matter to survivors and their families in our work.